Showing posts with label solidarity. Show all posts
Showing posts with label solidarity. Show all posts

Monday, January 29, 2024

The Mental Health Crisis

I read an announcement this morning and associated media release about a NYS senator supporting introduced legislation to help recruit more mental health professionals to state counties that lack them. Which is most of NY state and nearly all rural counties.

One of her comments reflects public attitudes and policy regarding mental heath in this country (let alone the state). And it "stoked my fire" enough to type and send her an email (see below). 

Writing the email was easy. What's less easy is posting it here with my identification added to it. It's like stepping out on a public street naked with a sign, "See us, help us," where the typical reaction is that most other people will turn away or pretend they didn't see. That is the stigma all with mental health issues carry. 

Mental health issues don't mean we are damaged or broken. For some, we are just different; some of us have managed to cope. For others, they live every day in a nightmare. Most of us also remain hidden and invisible; by our own choice, because we are ignored, or we can't get help. It's not just an individual's problem, or New York's problem, it is the entire country. 

We really are more alike than we are different. But the stigma pushes us away, and, in some cases, kills us. This country's perceptions and public policy has, in a minute quality and quantity, changed for the better. But not enough. And the population of the troubled have grown. Just as centuries ago, only the privileged have ensured access to help and care.

This needs to change. It is starts with each and every person.
_____________________________________________________________

Contents of my email:

"I read the announcement and media release about the effort to increase mental health professionals in New York state counties that need it. Which, judging from the map in the media, is 73% of all NY state counties. Most of the latter are rural.

Offering student loan forgiveness for MH “professionals” is a pittance to the epidemic of mental health issues in this state (and country). The offer appeals more to recent graduates than the experienced exerts and professionals that are sorely needed.

The comment in the media piece demonstrates the attitude of people in our society that others with mental health issues are only “an enormous burden on our society and economy as a whole, imposing millions of dollars in direct and indirect costs." Very little consideration of the personal pain of the afflicted, their families, and their loved ones. We are whitewashed, as we have been for centuries.

Increasing professionals will not lessen or solve the MH epidemic. Most of the afflicted cannot afford professional help, even with most insurances. And many do not have any insurance. This is why a high number of people with MH issues die (overdose or suicide) or end up incarcerated. This results from lack of support and help. Isn’t it ironic that the only time the public notices is when they are in jail or in obituaries?

A large % of people and families live paycheck to paycheck. They can’t afford professional help because they struggle to feed themselves, pay their rents, and make it to their jobs. They also fear the “system”, scared that their children will be taken from them, that they will lose input or control over their own lives, and, most of all , they fear the stigma. Which, as your comment demonstrates and perpetuates, is very real and alive.

Mental health acknowledges no social and economic boundaries. Society sets the boundaries. And the privileged can afford professional help and services. Especially in the cities, as the map demonstrates. Rural people are left to flounder through the nightmares in which they live.

Do better. Help bring the mental health crisis to the forefront of the ongoing overall health crisis. Help them by reducing the stigmas and fear. Help them by making MH care more accessible and affordable. Help the public understand that 1 in 5 people in this country experience MH issues. And that number may actually be higher because many people hide it or are undiagnosed. They are the invisible people that silently cry out for help.

I’m on the autistic spectrum, diagnosed late in life. Most of my life has been living in a “different world” that no one else knew or saw. I know others in worse situations that live moment to moment wondering how they will cope and make it to the next day. I see undiagnosed children with less awareness of their problems, and, most of all, their futures. Some may not have a future.

We are the 'I have no mouth and I must scream.' "



Thursday, November 02, 2023

All change is not equal: good change and bad change

One commonly known trait of autism is fear of change. Reaction to change can be extreme, e.g. a 'meltdown', or mild, such as slight anxiety. It's usually inherent, but also adaptive. 

As a child and through early adulthood, I did not deal well with change. It always induced anxiety. Most times it manifested in a controlled way: part or complete shutdown. I just completely withdrew into myself and shut my mind and body 'off'. A few times it resulted in stomping, angry yelling, shaking, sweating, and/or crying. Commonly called 'tantrums'. But it was rarely explosive (mostly due to consistent shaming "Girls don't act that way!"*).

I remember my mother telling the adult me on the phone once, "You don't like change, do you." It wasn't a question; it was a statement. I realized she was right. Remembering something I saw on the TV a few years prior helped me to try and address that. 

During torrential flooding from a massive storm in California may years before, a river overflowed it's banks and flooded a town. A media crew in a boat was filming the damage and talking about it. As they floated past a house with water nearly up to the eaves, they asked a man on the roof what it was like. He smiled and calmly said "Change is good!!". 

That 30-second film clip is anchored in my brain. I reach for and use it whenever a big change is expected or pops up unexpectedly. It sets a stage for me to navigate through a change, be it having to go to a new doctor, moving across the country, losing my funding for research and finding a new position, going to a place I haven't been before, etc. Especially a change in routine. For example, unable to follow my gym schedule (this really upsets me) due to an illness or other demand. 

A more recent huge change was retiring from academia. I'm still dealing with that 10 years later, but better than immediately afterwards. Another was changing my  post-retirement routine, which was travelling around the country for nine years in my travel trailer and working at wildlife refuges. The latter was a sacrifice for my daughter and her family, and one I would not have made for anyone else. I'm still trying to adapt to that, too.

Being an adult with late-identified Asperger's, I had already established ways to mitigate many of my Asperger's idiosyncrasies. One is by masking my behavior (especially in academia). But that comes at a cost when done for too long. The edges start crumbling and people say I'm edgy and irritated. Or I'll shut down: I turn into a zombie. If I don't get a reprieve, I blow up. 

Some people ask me how I handled traveling around the country so often if I am on the autism spectrum. "You're not afraid of change! You can't be autistic.". That's not exactly correct. I'm not 'afraid' of change because logically I now know and accept that life is full of change. But I can get anxious about change. Sometimes more than others. And, after 5 decades I've learned ways to cope. Most times.

One is anticipation and expectation. If I know a change is coming, I plan for it. Often to the minute details. It then becomes a sequential adaptation. For my trips across country, I would plan routes, timing, location and time stops for gas, overnight stops, and arrivals. My biggest anxiety was breakdowns (which did happen once). 

Unanticipated changes are slightly different. If it involves sensory changes, it has more immediate responses that I can't control. Such as flashing lights, loud sounds, etc. "Everybody does!", you might think. Sure, but do they cause extreme physical and mental reactions that last too long? Does a loud muffler cause your entire body to shake, lose your balance, and your head feeling like it's going to explode for several minutes? Does a child's screaming sear your brain like hot pokers? (think of someone putting your head next to a fire siren) Do flashes of bright light cause you to lose balance and make you nauseous? Does constant dog barking feel like a hammer beating your head? If someone grabs/hugs/or touches me unexpectantly, I'll flail and back away in a 'fight or flight' response. (Please don't hug me.)

Sensory perception, integration and/or processing are different for many on the AS.  Learning about how the autistic brain is wired differently than neurotypical brains and how to mitigate reactions to triggers helps. I wear sunglasses a lot, my regular glasses have a tint to negate fluorescent lights, and are progressive darkening. I carry noise canceling ear plugs all the time. 

The last 40+ years have been forcefully camouflaging myself to be like the neurotypical 'normal'. But it has never been my 'normal'; rarely being myself. It's like wearing a costume most of the time. And it's exhausting. Meeting other neurodivergent people has been an awakening that I'm not alone. 

I now feel affirmed and courageous enough to ask people not to hug me or to ask first. (wish I had a shirt that read, "Please respect my personal space") Most times I compromise, but other times will be who and what I am: different. When necessary, I will tell a person I'm Asperger's, or on the AS. Mostly because I want to contribute to educating others about autism and change stereotypic 'typing' of autistics by neurotypical people. But also to encourage them to meet us halfway. 

Those are good changes.

👉For an excellent description of what the "Autism Spectrum" really is, read this webpage, "What Is Autism Spectrum Disorder (ASD)?". 

_________________________________

* One thing that has helped with that (all my life) is motion: pacing, twitching my leg, thumbing on a surface with my fingers, playing with my hair, bouncing on the balls of my feet, twirling my pen/pencil. Running is good; riding a horse or motorcycle is freedom. All the others mentioned were punished by my mother or teachers: slaps on the hands or knee, having to sit on my hands, told to stand still, etc. Later, it manifested in outdoor physical work and lifting weights. I wasn't hyper: it was a way of physically dealing with stress and anxiety. It 'quieted the brain and body'. 


Saturday, January 21, 2017

This is becoming your reality


It has begun........
 
Those people that struggle will be struggling more. The inequality will grow wider.
Censorship and propaganda will proliferate. You will know only what the Dictator wants you to know. The federal government will have no transparency.

This is what you voted for. Be prepared to shoulder your responsibility in this.


"Soon after Donald Trump was sworn in as president, his administration undid one of Barack Obama’s last-minute economic-policy actions: a mortgage-fee cut under a government program that’s popular with first-time home buyers and low-income borrowers. The new administration on Friday said it’s canceling a reduction in the Federal Housing Administration’s annual fee for most borrowers. The cut would have reduced the annual premium for someone borrowing $200,000 by $500 in the first year."

and

"Within hours of the presidential transition, the White House, now under the control of President Donald Trump, took down the Native Americans web page that was part of the Obama White House website for the past eight years.

Also gone from the Trump White House website are web pages on civil rights, people with disabilities and climate change.

New to the White House website is First Lady Melania Trump biography, which is normal when a presidential transition occurs. What is not generally done though is promoting a First Lady’s product, as is now the case. The new web page mentions her  jewelry line sold on QVC."

and

 "‘‘All bureaus and the department have been directed by incoming administration to shut down Twitter platforms immediately until further notice,’’ said an email circulated to Park Service employees Friday afternoon."

and

"Shortly after President Donald Trump raised his right hand and took the Oath of Office, the Joining Forces page on WhiteHouse.gov went dark."


This is only the beginning. To be silent, is to be complicit.